Toad in the Hole
January 29, 2007
I've been a bit distracted this weekend but I haven't quite dropped dead. More to the point, neither has my sister. She sure gave us a scare though -- blood pressure hitting bottom (like 52/18) twice, tons of internal bleeding, two rounds in ICU ("What are you doing back here?" "Why, was I somewhere else?") -- well, never mind the details. It was as scared as I've ever been, and 3000 miles' of helpless besides.
I just talked to her. Her voice is shaky but she's crackin' wise, and able to rise and walk to the bathroom. Any minute now, real food for lunch. The other good news is that she's got the paperwork to get on a transplant list, and some MD advocates on her side -- hotshots who apparently get to give orders to other medical folks, as opposed to the guy who she saw first a couple months ago who told her, "Get married and get a job so you'll have health coverage!" -- evidently never having heard of the concept of "pre-existing condition." Just for starters.
This was the same guy who put her on Lisonopril for her blood pressure; a drug that's Not A Good Idea for someone whose kidneys (among other useful bits) are screwed up. Guess who just got fired as her doc.
We really thought we were losing her this time. Damn it was good to hear her voice.
Based on the phone traffic among the lot of us -- brother, sisters, nieces, and my sister's valiant ex-ex-husband (who was IIRC in the waiting room when she was ordered to get married) I'd endorse buying stock in a phone company soon. Pretty much any phone company; we're all over the map. (Working Assets here.)Posted at January 29, 2007 05:00 PM
that sounds awful, ron, but i'm really glad she is doing better, is getting listed for transplant, and that she dumped that idiot doctor.
Posted by: kathy a at January 29, 2007 09:45 PM
Aw, crap. I thought she was out of the woods. (I guess you all did, too.) I'm so sorry!
Fingers crossed for better days, and big sloppy virtual hugs all around.
Posted by: Sara at January 30, 2007 12:47 AM
Hey, Ron, glad your sister's doing better. The physical distance adds another layer to the worry.
So does stupid doctors. . . "Get married and get a job," indeed. They would sure solve MY medical problems.
Posted by: Sally at January 30, 2007 12:51 AM
can i start over? because that comment doesn't begin to cover it.
almost losing your sister? this sounds like such a nightmare all around, and the distance can't help -- but how do you even begin thinking about maybe losing a sibling? it does not sound like she was in good shape at all -- and of course, you know far better than i do about what the damned monitors are saying, and how serious her condition was/is.
her former doctor should be strung up. seriously. the comment about getting married and getting a job -- what universe does he live in, that he could say that out loud? doctors are supposed to understand about the problems of getting insurance and that sick people have trouble finding a new job. shouldn't he also have some better ideas than suggesting insurance fraud via marriage [which wouldn't work anyway]? AND he managed to insult and further marinalize a sick patient. way to go!
he'd be the perfect buffoon doctor just for that, but prescribing something contraindicated for kidney patients is just plain malpractice.
i'm really glad sis is perking up, and hope she continues to do so. this must be scary as hell, ron. getting access and advocacy for a transplant is good news indeed -- but a transplant is not a walk in the park, and being listed doesn't mean it will happen. damn damn damn.
wishing you strength, sending virtual hugs and a decent meal, crossing fingers.
Posted by: kathy a at January 30, 2007 12:52 AM
I've been so many versions of the "there" you're experiencing right now . . . and still going through a few of them, seeing as how mom is on a transplant list as well, though her condition isn't quite as dire as your sister's has been.
I'd cook for you and pour the wine, were you not several thousand miles from me, as well.
Posted by: narya at January 30, 2007 01:02 AM
Wow, thanks, all. Joe's making nasi goreng tonight, and that'll do nicely for now. Watch out, though; I just might show up for real meals, and wine.
Her kidneys have perked up too, now that the stoopid drug and the other stuff are out of the way. (It's not a kidney transplant we're talking about, just btw.) She does have good family advocates there -- one of our nieces in Orlando is a seriously sharp kid who's finishing her RN this summer; the ex-ex is a Big Loud Guy when the occasion demands, and quite the bulldog; another of those sharp nieces has been through med hell once herself and work(s?ed?) for a hospital finance office. And that's just for example. So I don't have to try to strangle docs from athe other side of the continent all by myself.
Yeah, transplant is scary as hell. But scary is an upgrade from how things were just two days ago.
Narya, I'm crossing my fingers for your mom too.
Posted by: Ron at January 30, 2007 01:54 AM
Thinking about you all... That's bad stuff. Glad she has so many people going to bat for her, though.
Posted by: Pica at January 30, 2007 04:44 AM