Toad in the Hole

February 23, 2007

I'm Home: So Far, So Good

My sister is alive and coherent and mad at all the right people. She's in Miami, in the hospital. The theory is they'll get her stabilized enough to leave the hospital and get herself in condition -- eating, exercise -- for a transplant. This will probably all happen in Miami, in a sort of hostel or adult Ronald McDonald House for Jackson Memorial patients' family members. Two sets of docs are arguing over whether she needs a kidney or two along with the liver. This is a good argument to see them having, you understand.

And I'd like to personally and belatedly thank Bdaggerlee for blessing my sister's name, and Sara and Sally and Pica and Narya and kathy a and Chris (and Becky, who I know was over his shoulder) and my friends on the ground here for letting me know they were thinking about her and me and us and this. And, for the record: Joe, who kept the household and the jobs and support going while I was there.

The past two weeks have been alternating spells of miracle and hell, and the lot of us have popped ears and whiplash from the emotionsl (and physical!) roller-coaster ride. It ain't over yet, but by the gods greater and lesser and all their gnomelike minions, she's alive. That was by no means a given two weeks ago.

Stay tuned. Oh boy do I have a story to tell.

Posted at February 23, 2007 05:12 PM

Comments

Welcome home, Ron. Sounds like you were on a rollercoaster ride caught in a whirlwind, not to mention the frog-strangling downpour.

Glad your sister's doing better. Being mad at the right people is a good sign!

Posted by: Sally at February 23, 2007 11:41 PM


Woo-hoo! (which is the atheist version of hallelujah, saints be praised, in case you didn't know). I must admit that I want to hear the story, even if bits and pieces are what come out at a time. Most important, though, I'm glad everyone's still hanging in there, particularly your sister. And you. If you were here, I'd be opening a second bottle of wine before serving dessert (an almond and poached pear tart? a pithivier? a pie? a raspberry mousse and chocolate confection? hard to say . . .)

Posted by: narya at February 24, 2007 03:03 AM


Ron: welcome home. I've missed your voice here. Good to hear your sister is hanging in there.

What do YOU need, dear Ron? let us know. We're just up the way.

Hugs.

Posted by: Pica at February 24, 2007 02:55 PM


It would be ironic if your sister were having to get in shape while staying at a truly McDonald's-sponsored house. Heh.

I am glad you all made it through this stage, will continue the stream of happy, hopeful thoughts for future developments, and look forward to the story even, as narya suggested, if it comes out in pieces.

Meanwhile, have a good nap, and yay Joe!

Posted by: Sara at February 24, 2007 03:12 PM


The whiplash continues. She's not in good shape as of this hour. Evidently some medical team member had the bright idea to re-insert a Foley catheter in the middle of the night -- she'd gone back to what she'd been doing since November: self-cathing, which involves a smaller tube -- and that started bleeding. They gave her more platelets and meds fopr the acute pain this caused her, and scrapped the plan to discharge her to the hostel. And she had two really bad nights in a row this time.

I just talked to our brother, who's on the way there. He said she'd been intubated and was on dialysis. And was also on the top of the transplant list. Looks like desperation and a dose of med-team CYA to me; the transplant team was furious, and I assume they have a lot of weight there.

I'm scared shitless, just for the record. She's been on death's front porch, but never intubated before this.

And it's so awful to be so far away and helpless. I can't even slap anybody.

Posted by: Ron at February 24, 2007 05:22 PM


(((((( ron )))))))

how horrible. thinking of your sister and you. hope she gets stablized soon.

Posted by: kathy a at February 24, 2007 05:35 PM


Oh, Ron, I truly have been there, and I know how terrible it is; I'm so sorry. I'll keep hoping for a good outcome. My thoughts are with you.

Posted by: narya at February 25, 2007 01:40 AM


Sorry to hear about your sister's condition. I know the feeling of helplessness, of being far away.

Be gentle with yourself.

Thinking of you and Joe.

Posted by: Sally at February 25, 2007 02:50 AM


Oh, good grief!!!! This sucks so much!

Still holding you all in my thoughts, and hoping.

Posted by: Sara at February 25, 2007 02:48 PM


xoxox

Posted by: kathy a at February 26, 2007 06:26 PM


Prayer for Freedom From Suffering

May all beings everywhere plagued
with sufferings of body and mind
quickly be freed from their illnesses.
May those frightened cease to be afraid,
and may those bound be free.
May the powerless find power,
and may people think of befriending
one another.
May those who find themselves in trackless,
fearful wilderness—
the children, the aged, the unprotected—
be guarded by beneficent celestials,
and may they swiftly attain Buddhahood.

- The Buddha

Posted by: B. Dagger Lee at February 27, 2007 03:04 PM